Re: Introduction

[Thomas Hosie <TomHosie@xxxxxxx>]

Margie,

Thanks for the warm welcome.

At 12:46 AM 10/07/1999 EDT, you wrote:
>Hi, Tom -
>
>Welcome to the list.  My husband was diagnosed at age 37.  You'll find many
>young onset PWP (people with Parkinson's) here on the list, so you've come to
>the right place.
>
>You didn't say where you live or whether you are seeing a movement disorder
>specialist rather than a general neurologist.  If you have access to one, I'd
>strongly recommend it.  If you're not sure where the nearest movement
>disorder specialist is, someone on the list is sure to be able to help.

I live in Rochester (upstate) New York. I am seeing a doctor at Strong
Memorial
Hospital, University of Rochester, Neuro MIND Center, Parkinson's Diseaes
Center.
So, many different names for the same place.


>
>Now for my unsolicited, non-medical opinion:  The dosages of Sinemet sound
>very heavy for someone so newly diagnosed.  It makes me wonder if the shaking
>you describe is truly  PD tremor or if it could be dyskinesia caused by too
>much medication.


Yes, I and my Doc. would agree that I have increased to a high dosage of
Sinemet quicker
than we would have liked to.
I did not start taking Sinemet right away. Only when my tremor reach the
point where it
got it my way of working, did I take Sinemet. And, I started at half a pill
3 times a day.

When I am late or miss a dosage my tremor is very noticable and but pain is
sharp.


>You'll find we're fairly free with advice here on the list,
>and of course you're free to ignore it, and should always consider the
>source.  However, if you hear the same thing from several list members, it
>might be worth thinking about.  The pain in your buttocks could also be from
>dystonia, another side effect of medication.
>
>The other bit of advice I have is to recommend that you look for a
>young-onset support group in your area.  If you don't live near such a
>meeting, this list is an excellent source of support.  In fact, it's a
>gigantic support group of about 1800 people.  Glad you could join us.
>
>Margie Swindler   cg for Dick, 54/17
>

Enjoy!
TomHosie@xxxxxxx