[Fwd: Advocates]

[Charlotte Mancuso <serenityplus@xxxxxxxxxxxxxxxx>]

>             from Walter:
>
>           The group that seems to be missing as public advocates for PD
>           research are the researcher, clinicians and doctors who are involved
>           with PD research and treatment.  Is it my impression that they seem 
> to
>           be above the fray?  If so, how can they become involved?
>
---------------------------------------
Charlotte Mancuso wrote:

> Hello,
>
> On September 28, there was a Senate hearing before the L/HHS/E appropriations 
> subcommittee
> regarding focused funding for PD research.  Among those testifying (Michael 
> J. Fox, Jim Cordy,
> NPF, Joan Samuelson, PAN, Dr. G. Fischback head of the NINDS, National 
> Institute of
> Neurological Disorders and Stroke), was Dr. William Langston, Founder and 
> President of the
> Parkinson's Institute in Sunnyvale, CA.  Dr. Langston is a world-renowned 
> expert in
> Parkinson's research.  He  discovered MPTP used to create a  Parkinson's  
> animal model from
> which to study the physiology of the brain, the disease process, and to test 
> new therapies,
> and he sees patients in the clinic.
>
> But I know what you mean.  Even though they partner with groups like PAN and 
> testify at
> hearings, give talks, and even speak to the media, they usually do maintain a 
> sort of detached
> objectivity that really is kind of traditional in the sciences.  I'm sure 
> there are political
> reasons, conflicts of interest issues, and so on; but I liken this demeanor 
> to the research
> papers they write that are always in passive voice, which gives their work 
> the tone of this
> same detached objectivity, e.g.,
>
>           the substantia nigra was lesioned and parkinsonian symptoms were
>           observed...
>
> (or perhaps the detachment of a past President who doesn't want to take 
> responsibility for
> some debacle, such as the famous or infamous phrase "mistakes were made," 
> uttered by President
> Reagan during the Iran-Contra scandal.)
>
> Well, I digress-- just some thoughts...I don't know how to involve them more. 
>  Call Pan when
> this busy funding period is over:  1-800-850-4726.
>
> Charlotte
>
>
> -----------------------------------------
> Charlotte Mancuso
> ***************************************************
> For advocacy, medical, and other PD-related material, go to:
> 
>

--
Charlotte Mancuso
***************************************************
For advocacy, medical, and other PD-related material, go to: