Re: PD:FOR REAL - YOUR INPUT

[Hilary Blue <azure2@xxxxxxxxx>]

This is exactly (i think) what my friend ann and i are trying ot canvas for -
from the other end. Surely, amongst 1 million pwps in this country ( a
conservative estimate) and three caregivers, and their families, and their
sisters and their cousins and their aunts, amd all rabbit's friends and
relations,there must be doctors , lawyers, ex-SSI employees, contractors,
plumbers, car mechanics -etc. etc.who could spearhead groups of volunteers to
help other pwps when they need someone to talk out for them. Sort of
specialist patient advocates . so that when a pwp is faced with a situation ,
there is someone on call to give moral and knowledgeable support, to stand up
for the rights of the pwp, from a hearing on ssi, to a car breaking down on
the highway to being faced with foreclosure....
hilary

Leo Fuhr wrote:
>
> If I read and understood this post of Cari's, the question is "Would a
> general contractor who explains services for patients or caregivers/family
> of patients with Parkinson's have been helpful?"  This gen'l contractor
> might be a not-for-profit org volunteer or employee who could guide pwp to
> the services that might help pwp cope or better function with PD.
>
> My answer is YES, YES, YES!!!!!  But I don't know of any such contractor
> and that is why I attend a support group, belong to PAN, NPF and PIENetwork
> and if I could afford it would belong to some more PD orgs.
etc........