Re: Dyston ia - Further thoughts

[Bill and Lenore Olson <drwho@xxxxxxxxxxxxxx>]

----- Original Message -----
From: WILLIAM MASON <POSSUM.PIE.INN@xxxxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Saturday, December 04, 1999 8:49 AM
Subject: Re: Dyston ia - Further thoughts


> ----- Original Message -----
> From: Brian Collins <bjc@xxxxxxxxxxxxxxx>
> To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Saturday, November 20, 1999 8:04 AM
> Subject: Dyston ia - Further thoughts
>
>
> I glad to see a lot of info regarding Dystonia and I thought it was a
state> I would be happy to hear of any other strategies for the battle
against
> Dystonia.
> Pogo
>
HIi Brian and William: For several years, I had a very uncomfortable problem
with leg cramps. This usually occured in the morning at about 5 a.m. Nothing
seemed to help. B ut I am glad to say that I now have very little problem
with my calf muscles tightening up. I now take my carbidopa\levodopa crushed
and suspended in 1000 c.c.of water. Until recently  I also added half a
teaspoon of ascorbic acid.  I take 60 cc every waking hour; Each dose is
equivalent to 0.6 of my 25/100 carbidopa/kevodopa  tablets which seems to
even out my response and lessen dystonia. The most helpful was my receriving
a pallidal stim surgery nearly four years ago. Until recently thyat had just
about completely eliminated  dystonia; but the positive side is that I am
cutting back on my carbidopa\levodopa and that was a goal that is just being
realized
                        drwho@xxxxxxxxxxxxxx/ 69/dx1983/
                       its getting tougher/PTL anyway!Bill Olson