Re: nightmare on range street

[Hilary Blue <azure2@xxxxxxxxx>]

>
> a review of the latest ivan video:
>          A PARKINSON'S NIGHTMARE - FACING FORECLOSURE.
>
> This must clearly be the best.
> In its simplicity, it tells the story of Ivan Suzman (50/39/36),
> internationally known PWP and vocal PIEN member,
> and contributor of many ideas.
> It chronicles the financial downfall and the destruction of his life,
> not by Parkinson's,  per se,
> but by society's lack of understanding
> of the effect PD has on his life,
> and what his basic needs are in order to survive
> It is not a pretty picture.
>
> Ivan has obviously aged since the last televised interview,
> and he looked extremely tired.
> We see him going into an off period -
> and thank you ivan, for allowing yourself
> to be filmed in that state.
> It had a profound effect
> on the people
> watching the video .- members of my YOPD support group
>
> I think this little glimpse
> into the struggles and  problems
> ivan has been  facing
> is a marvelous opportunity
> for us to show the general public
> and the people who deal with pwps
>  on an every day basis
> and yet have no real understanding of their needs -
> hospital staff, social workers, social services
> clerks, lawyers......
>
> (AND HUMAN RIGHTS COMMISSIONERS!)
>
>  hilary blue (50/33/24).