Re: Just an idea

[Cathy Morse <cmorse@xxxxxxxxxxxxx>]

Paul,
I like the idea. and I'm sure my neuro would be happy to have the reference to
give to  his pateints. Let me know if I can do anything to help.  And please 
keep
me informed on this project.

Thanks,
Cathy
(50,48,46)









Paul Lauer wrote:

> Dear list: Over the weekend, I bumped into an acquaintance who I hadn't seen
> in 3 or 4 years who had developed PD, as I had, in the intervening period.
> After a short while, it was painfully obvious how little he knew about the
> disease even though he was in his third year with it. As it happens, he and
> his wife are not computerized, so my intended suggestion to get on the list
> would have gone nowhere. But I began to think about all the other pwp who are
> not on the list and wonder what their extent of knowledge was. Aside from
> what I learn on the list directly, the references which pop up from time to
> time about other sources of info are invaluable and leads one to the sites
> fro information gathering. For example, I recently added 'Ask Dr. Lieberman'
> to my list membership and receive as much mail from that source as from the
> pienet. Anyway, I digress. I was wondering if there would be any sense in
> trying to mount an informational campaign, centered say on Neuro's offices,
> in an attempt to make more pwp aware of the list. Perhaps someone with PR
> skills could compose a flyer which we could download (for uniformity) and
> then with Neuro permission, leave a batch of them in waiting rooms or on
> bulletin boards for patients to pick up. Any merit? Any other ideas? Or
> should I shut up.
>
> Paul H. Lauer