Re: Wilson Disease

[Edward Kleinmeyer <ekleinmeyer@xxxxxxxxxxx>]

When I read the item on Wilsons it brought back the Fall I eas 15,had just
started 9th grade and got Hepitites. (probably spelled wrong) Anyway ,I
remembered that I was put in a room alone and mother sterelized everything I
came in contact with,and feed me a lot of grapefruit. Any kind of fruit in
those days was not seen in our home,so she was doing what the Dr. told her.
Then the other things I read fit more with what is going on with me. I'm
still anxious,but Jan.7 Maybe I'll find out something positive. Shirley
-----Original Message-----
From: Charles T. Meyer, M.D. <cmeyer2@xxxxxxxx>
To: PARKINSN@xxxxxxxxxxxxxxxxxxxx <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Date: Thursday, December 30, 1999 10:46 AM
Subject: Re: Wilson Disease


>Debbie,
>
>The advice about Wilson's Disease especially from Ray is excellent.
>Wilson's is one of the "Rule outs" most neurologists check at the time that
>they suspect PD and it can be treatable.  What I remember from med school
is
>the Kayser-Fleisher Ring which can form from deposits of copper around the
>Iris (colored portion) of the eye and copper metabolism.  However my
>diagnosing neurologist checked for and found an  arcus senilus which can
>appear like a Kayser-Fleisher ring and double checked to see if I had
>Wilson's Disease. (Which I didn't have)
>
>It is extremely rare but the fact that you had a cousin that had the
>illness increases the risk significantly.  Your mother probably does not
>have  Wilson's  Disease but it absolutely should be checked for.
>
>Charlie
>
>----- Original Message -----
>From: Debbie White <dwhite@xxxxxxxxxxxx>
>To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
>Sent: Wednesday, December 29, 1999 5:46 PM
>Subject: Re: Wilson Disease
>
>
>> Thanks to Rita, Sharon, Ray, Bill, Bob, Jane, and Shirley -- who
responded
>> to my inquiry about Wilson disease.
>>
>> I was curious because we have a cousin in England who died during a liver
>> transplant, necessitated by Wilson. When I looked into it and saw that it
>> had neurological symptoms close to my mom's, I wondered whether testing
>for
>> it was routine. In any case, my mother will be asking her doctor ASAP.
>> Thanks again. Debbie
>>
>> Debbie White
>>
>> dwhite@xxxxxxxxxxxx
>>
>> > -----Original Message-----
>> > From: Parkinson's Information Exchange Network
>> > [mailto:PARKINSN@xxxxxxxxxxxxxxxxxxxx]On Behalf Of Edward Kleinmeyer
>> > Sent: Wednesday, December 29, 1999 3:51 PM
>> > To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
>> > Subject: Re: Wilson Disease
>> >
>> >
>> > Wow,I read the article on Wilsons and was in shock. I have been
thinking
>I
>> > have PD and It's more likely it's Wilsons. I will be glad when Jan 7
>gets
>> > here so I can go to the Neurolegist and find out what is going on
>> > for sure.
>> > Thanks for the information. Shirley
>> > -----Original Message-----
>> > From: Bob Anibal <boba@xxxxxxxxxxxx>
>> > To: PARKINSN@xxxxxxxxxxxxxxxxxxxx <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
>> > Date: Wednesday, December 29, 1999 7:07 AM
>> > Subject: Re: Wilson Disease
>> >
>> >
>> > >Besides the copper test, there is an abnormality of the retina not
>> > generally
>> > >known.
>> > >Bob Anibal
>> > >----- Original Message -----
>> > >From: "William A. Parrette" <wap@xxxxxxx>
>> > >To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
>> > >Sent: Wednesday, December 29, 1999 7:29 AM
>> > >Subject: Re: Wilson Disease
>> > >
>> > >
>> > >Hi all,
>> > >
>> > >        On Wed, 29 Dec 1999, the digest contained:
>> > >
>> > >> From:    Debbie White <dwhite@xxxxxxxxxxxx>
>> > >> Subject: Wilson Disease
>> > >>
>> > >> In coming up with a diagnosis, was anyone tested for Wilson disease?
>> > >Thanks.
>> > >>
>> > >> Debbie White
>> > >> dwhite@xxxxxxxxxxxx
>> > >
>> > >        Way, way back in 1995 -- when my symptoms first started catch-
>> > >     ing my attention -- the first neurologist I went to (out of 4 :-(
>> > >     ) tested for this disease first.  He told me that it was rare but
>> > >     that it's symptoms were almost identical to the ones  I  was  ex-
>> > >     hibiting.
>> > >
>> > >        If I remember correctly, the test involved checking for abnor-
>> > >     mally high levels of copper in the liver ... I think.
>> > >
>> > >        Here's a link I found -- among several related links for other
>> > >     disorders that have similar symptoms on my Web site -- that talks
>> > >     a little about  Wilson's Disease:
>> > >
>> > >                         
>> > >
>> > >        Take care ...
>> > >
>> > >Bill--
>> > >  ...who has been told to drive defensively & has considered
>> > buying a tank.
>> > >                                                   (42?) |\__/|  .~
>~.
>> > >.___. William A. ....._..._ .......7177 Heritage Drive\-
>> > /o=o'`./      .'+
>> > >| _ \__ _ _ _ _ _ ___| |_| |_ ___ .Westchester........| {o__,
>> > \    {   |
>> > >|  _/ _` | '_| '_/ -_)  _|  _/ -_).OH 45069-4012......|   / .  .
>> > )    \  |
>> > >|_| \__,_|_| |_| \___|\__|\__\___|.513/779-0780.......|   `-`
>> > '-' \    } |
>> > >.....  .... wap@xxxxxxx .......+-
>> (
>> >   )_.' -+
>> > >                                                           '---.~_ _
_|
>> >
>>