Parkinsn's Email List Message
Posting to the Parkinsn List is a benefit of Subscription
Back Biting
Hello Fellow listserv members, A few of you know me as I have written to you directly and another few = may remember the infrequent posts that I have made. I'm not a PWP, my = father is. I monitor this listserver in order to supply him with info = and to better educate myself about this disease. This has been an = extremely rewarding and fruitful occupation cheifly because of the = herculean efforts of the many dedicated people who post messages here = frequently. My family and I have gleaned an extraordinary amount of = useful information. In part it provided my father with the info and = confidence to go through a pallidotomy, with remarkable results. It has = also given him useful suggestions concerning medication, diet, and = lifestyle aids. It has given us means to help spur the political = process in a direction favorable to pwp and it has allowed us to meet = and interact with some trully fantastic people. Once again, all of = these things have been and continue to be extremely valuable. If you've = read this far you're waiting for the BUT, so here it is: Recently there has been an inordinate number of posts which I can only = characterize as insulting, demeaning, and lets face it = counterproductive. I don't wish to spend anymore effort dwelling on = these posts other than to make this suggestion. Time and again = listserve members have commented on how helpful this list has been in = their lives. Do any of you think that in saying this they refer to = posts centered around personal attacks? I suggest that before we post = something to this list we ask ourselves, is this post going to be = helpful to my fellow pwps, caregivers, or affected family members? If = the answer is no, maybe a better way to vent, if venting is required, is = to send a private message to the person with whom you take exception. = After all, many of these discussions simply don't require an audience or = a cheering section. =20 Though my suggestion may sound sanctimonious, I really don't feel that = way. In fact as I write this I'm wondering if the glass walls in my = house will cut me to ribbons when the rocks start flying back in this = direction. But I really hope that my suggestion may give some of us, = myself included, a moment of pause before we hit the "send now" key. Finally, I'd request that if any of you take exception to this post, = PLEASE respond to me privately. The last thing I wish to do here is add = fuel to the fire. Oh...almost forgot... none of the above applies to yam salesman. Sincerely, Lew Coggins coggins@xxxxxxxxxxxxx Nerka on the undernet
Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.
Mail converted by MHonArc
2.6.10
Site Hosting donated by He.net
&
Grant from The Parkinson Alliance