Parkinsn's Email List Message

Posting to the Parkinsn List is a benefit of Subscription


[Message Prev][Message Next][Thread Prev][Thread Next][Message Index][Thread Index]

A Glimpse of Future Euphoria

Mail converted by MHonArc 2.6.10

Site Hosting donated by He.net
&
Grant from The Parkinson Alliance


I have been pondering how to describe the special moment that many of us =
experienced in Washington on July 15, for the next edition of our local =
newsletter. Even saying that it was one of the most inspirational days =
of my life doesn't quite do it justice.  I finally think that I have =
come up with the proper description.  Imagine the euphoria you might =
experience if you were absolutely convinced that there was going to be a =
cure for Parkinson's disease very soon.  On Tuesday evening July 15 a =
group of advocates numbering slightly over fifty shared that experience =
with hugs for everyone and tears in everyone's eyes.  Tuesday July began =
with one of the senior staffers of Senator Wellstone's office telling a =
crowd of about 70 advocates that for some pieces of legislation it all =
comes together and you know that it is the right time to move a Bill.  =
It was her opinion that this was the time for the Udall Bill. =20

After several presentations dealing with the current state of =
Parkinson's research (and each of these were very encouraging), Senator =
McCain, the former prison of war  in Vietnam and personal friend of Mo =
Udall, told us how we were going to see this Bill passed in the Senate.

We then spread out onto Capitol Hill and commenced to sign up three new =
Senators and over 30 new Representatives.  I was in the hotel lobby and =
received reports from each of the groups as they returned from Capitol =
Hill.  That afternoon's work gave us a clear majority of cosponsors of =
the Udall Bill in both houses.  That in itself was reason for =
celebration.  But the best was yet to come. =20

Senator Wellstone joined us for dinner.  His unwavering dedication stems =
in part from both his parents having had Parkinson's disease.  Senator =
Wellstone is an emotional man and an inspirational speaker.  He was on =
top of his game that evening.  He received six standing ovations, each =
one with the thundering response louder than the previous one.  When he =
finished everyone in that room knew that they were experiencing one of =
life's magical moments.  I have always spoken positively about the =
potential for a cure for Parkinson's in the near future.  That evening I =
was absolutely certain.

I  wish that I could bottle that energy and conviction to share with all =
those who suffer with this sinister disease and all of the dedicated =
researchers attempting to put the many pieces to the Parkinson's puzzle =
together.


Parkinsn's List Subject Index

Parkinsn's List Thread Index

Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.

Mail converted by MHonArc 2.6.10

Site Hosting donated by He.net
&
Grant from The Parkinson Alliance