Re: Questions for the Neurologist

[Lawrence Fleming <flemco-@xxxxxxxxxxxxxxx>]

Ken & Marie,

In my case, I kept a daily dairy (still do) and recorded all my thoughts and
concerns as well as my progress with medication (selegiline  and atenolol).
Approaching the time for my follow-up visit, my wife and I started condensing
the journal into questions.  We had a typed list when we visited and handed
him the list. We asked him what now seem like mundane questions but we went
through each question and noted his response.  Upon returning home I
transcribed his answers to my journal for follow-up on our next visit.

This effort made me feel like I was in control of the situation and less
passive.  The time you spend with your neuro is valuable so spend it wisely.

Larry Fleming
flemco-@xxxxxxx
PS I am 50 also and D-day (diagnosis day) at first changed the way I looked at
retirement; but, after being on the List for a few months, I have realized
there is life after diagnosis and I'm still going to retire.  Maybe I won't
sail the Caribbean for as long as I dreamed and........



-----Original Message-----
From:   Parkinson's Information Exchange  On Behalf Of Ken Elterich, Dir., Info
Srvs
Sent:   Tuesday, September 30, 1997 8:14 AM
To:     Multiple recipients of list PARKINSN
Subject:        Questions for the Neurologist

        Hello -
        I introduced my wife (52/2 weeks) and I to the list the
        other day. She had an MRI last night and will be going back
        to the Neurologist in a couple of weeks.  At her initial visit
        she was given a month's supply of Eldepryl. Her symptom is a
        shaking right arm. We've done quite a bit of reading (books
        and at the Parkinson's WEB site) and this list has already
        given us some great information.

        We'd like to be prepared for our next visit to the Neuro.
        What questions would you ask your Neuro at your initial
        follow-up visit if you had it to do all over again given
        what you know now?

        Thanks for your help.
                                - Ken & Marie -