Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.
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pd selfishness
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======================== To Camilla Flinterman} Camilla -- I believe your observations of your husband's turning more inward in his concerns is probably true in most every case when a once- healthy individual is forced beyond his own will to begin the task of dealing with his new "identity"...that of pain, disability, sadness, boredom, and a grieving for the loss of his former self. As a person who has had pd for almost 20 years, I am very fortunate to be relatively free of pain, disability, depression, or boredom as long as my meds are cooperating. When they are not, and my body begins to feel semi- paralyzed and like my insides are twisted up in tight knots, and finding a "comfortable" position to sit or lie down becomes an impossibility, I, too, become very self-oriented because I feel that nobody could possibly understand what this feels like. I don't want anyone to feel sorry for me...just to understand that they cannot "feel for me" what they have never experienced. It's a very lonely feeling at times, Camilla, but it is one that we must try to exchange....for acceptance. Warm Regards, Janice Long
Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.
Mail converted by MHonArc
2.6.10