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I was diagnosed last year as having parkinson's (one of several 'young parkinson's' recently diagnosed in our area). I didn't know anyone who had it and didn't know much about it so I did a lot of reading. One of the faculty for whom I work said only read books published recently as treatment has improved recently. She was right...I read one of the older books first and really scared myself. I don't recommend doing that. The Parkinson Foundation of Canada, 230 - 55 Bloor Street West, Toronto, Ontario M4W 1A5 (416) 964-1155 or (416) 964-7505 (fax) sent me the following list of books and pamphlets. I found 'Living Well with Parkinson's' the most useful. Parkinson's Disease - A Guide for Patient and Family by Dr. Roger C. Duvoisin, 1991. Publisher: Raven Press, 1185 Avenue of the Americas, New York, New York 10036. Parkinson's - A Patient's View, by Sidney Dorros, 1989. Publisher: Seven Locks Press, Inc., P. O. Box 72, Cabin John, Md. 20818. Caring for the Parkinson Patient, A Practical Guide, edited by J. Thomas Hutton, MD, PhD and Raye Lynne Dipple, PhD, 1989. Publishers: Prometheus Books, 700 East Amherst Street, Buffalo, New York 14215. Parkinson's Disease - What Now?, by Susan Calne, 1991. Publisher: University Hospital, University of British Columbia, 2211 Westbrook Mall, Vancouver, BC V6T 2B5 "Home Exercises" - A Thirty Minute VHS Video Tape by and for Parkinsonians. The Parkinson Foundation of Canada. Parkinson's Disease - One Step at a Time: Problems and Answers for Patients and Health Professionals, by Grimes, Gray, Grimes, 1989. Publishers: Parkinson's Society of Ottawa-Carlton, Ottawa Civic Hospital, 1053 Carling Avenue, Ottawa, Ontario K1Y 4E9 Living Well with Parkinson's - An Inspirational, Informative Guide for Parkinsonians and Their Loved Ones, by Atwood & Hunnewell, 1991. Publisher: John Wiley & Sons, inc., 605 Third Avenue, New York, NY 10158. The Parkinson's Challenge - A Beginner's Guide to a Good Life in the Slow Lane, by Jan Peter Stern, July, 1991. Publisher: DMS Publishers, P.O. Box #1817, Santa Monica, CA 90406 Hope some of these help.
Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.
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