Parkinsn's Email List Message
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Dear listfriends,
My messages "the good news (1 + 2)" were meant to inform you ABOUT PIBI and to
ask you if you want to help, but NOT to tell you that you should get your
inquiries in Holland.
You, my dear Listfriends are the best informed sufferers, carers, children
and doctors that excist.
But there are millions of people who don't know where to find the
information. They are NOT a
listmember and most them don't have a modem or a computer.
WE must help them finding their information.
WE must do the literature search instead of the neurologists;
THEY must find the cause and the CURE.
Plans are made to start special fundraising for Parkinson's research.
HOW much does it cost to find the cause?
HOW much does it cost to find the cure?
HOW much does it cost to improve QUALITY of life?
We don't even now how many patients there are in the world.
Is it possible that WE find out how many patients there are in our own country?
I'll send a table to the list which can be filled with population, patients,
Young Onset.
Please try to fill each row/column and even if an amount is filled change it
if you like.
The first table is a try-out. Change or add whatever you will. Together w'll
make the best
possible table and get some real figures of PD.
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Kees Paap Oudedijk 56
3612 AC Tienhoven The Netherlands
+31 346 281021 FAX + 31 346 281017
Age 45, 6 years PD
Collecting information
Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.
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